Arthrogryposis Multiplex Congenita Support Inc.
We are excited to announce that we have been approved for our 501(c) 3
non-profit status!!!!!
BECOME A MEMBER OF AMCSI!!
GO TO
www.amcsupport.org/member
History:
Ani Samargian created AMCsupport.org, an online
Arthrogryposis Multiplex Congenita (AMC) support group in July of 2005. Ani,
the mother of
Abigail Marie
, a child born with
Amyoplasia, a form of Arthrogryposis, created the group because at the time,
there was very little information available to families due to the rare
occurrence of AMC. The online group was a direct result of the high volume
of emails she received from families regarding a website she had created to
document her daughter’s progress. During the ensuing years, the interest and
activity of the online support group grew and blossomed. From the original
30 members, membership has grown to over 400 families. Once a strictly
online community, AMC support brought families together for The First Annual
AMC Convention, a real world gathering, in Chicago, Illinois, during the
summer of 2006. A second convention held in Arlington Texas, July 2007
brought even more families together. The largest portion of Ani’s dream was
to form an IRS recognized 501(C)(3) corporation that would continue her
support of families and medical professionals well into the future. With the
help of an army of volunteers, and the generous contributions of Roland
Pieper, an attorney whose granddaughter has Arthrogryposis, a Board of
Directors was created, and work began on the daunting process of becoming a
non-profit corporation. Submission of the application for the approval of
the IRS occurred on October 6, 2006. On September 7, 2007, Arthrogryposis
Multiplex Congenita Support, Inc. was granted Non-profit status as a
501(C)(3)corporation, and that dream became a reality.
t
~Pictures
from Chicago,(2006) 1st AMC convention go to
http://www.amcsupport.org/convention2006.htm
~Pictures
from Texas 2nd annual AMC Convention (2007)
http://www.amcsupport.org/texas.htm
~Pictures
from Ohio 3rd annual AMC Convention(2008)
http://www.positiveexposure.org/amc
Also my pics
on my pic page
http://theresadotcom.zoomshare.com/1.shtml
2009, Philly 4th Annual AMC Convention
2010 5th Annual AMC Convention in Lake Buena Vista Florida!!!! Florida page is up! go to
www.amcsupport.org/Florida.htm
Since '05, Arthrogryposis Multiplex Congenita
Support, Inc. has hosted annual conventions at *NO COST* to attendees. This
year our 5th Annual AMC Convention is being held in LBV, Florida.
6th Annual AMC Convention will be held in
Kansas City, Missouri July 27th - 31st 2011!!
Info coming soon!
Mission:
To provide and encourage more understanding and mutual support among anyone
affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To
create a higher standard of AMC awareness by means of Conventions, Meetings,
and Studies.
Vision Statement:
To provide educational material to new parents, or soon-to-be parents
regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).
To provide a resource of information to the medical field to include but not
limited to occupational therapists, physical therapists to assist them in
the treatment of a child or person with the diagnosis of AMC.
The Board of Directors (BOD):
bod@amcsupport.org
Ani S. Samargian, Founder
Theresa Lucas, President
Michele Schaffer, Vice-President, Program Director
Jennifer Keeton , Treasurer
Doris Heckert.
Parliamentarian
Donna Carleton, Secretary
MaryBeth Eberhard, , Member-at-large
Tracey Schalk Member-at-large
Zak Purdon, Member-at-large
Medical Advisory Board
Dr.Harold van Bosse
Dr.Judith Hall
PURCHASE AMC AWARENESS
wristbands Car ribbon Magnets, note cards, posters etc
at our AMCSI Store
www.amcsupport.org/shop
tshirts & other supplies at
http://www.zazzle.com/_amcsi_w.zazzle.com_amcsi_
|
donate to AMCSI through Paypal click here-->
AMCSI PAYPAL
or make checks payable to AMCSI & mail to
Arthrogryposis Multiplex Congenita Support, Inc P. O. Box 1883
Salyersville, KY 41465
|
|
