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BECOME A MEMBER OF AMCSI!!

GO TO www.amcsupport.org/becomeamember.html
 

History:
Ani Samargian created AMCsupport.org, an online Arthrogryposis Multiplex Congenita (AMC) support group in July of 2005. Ani, the mother of Abigail Marie , a child born with Amyoplasia, a form of Arthrogryposis, created the group because at the time, there was very little information available to families due to the rare occurrence of AMC. The online group was a direct result of the high volume of emails she received from families regarding a website she had created to document her daughter’s progress. During the ensuing years, the interest and activity of the online support group grew and blossomed. From the original 30 members, membership has grown to over 400 families. Once a strictly online community, AMC support brought families together for The First Annual AMC Conference, a real world gathering, in Chicago, Illinois, during the summer of 2006. A second Conference held in Arlington Texas, July 2007 brought even more families together. The largest portion of Ani’s dream was to form an IRS recognized 501(C)(3) corporation that would continue her support of families and medical professionals well into the future. With the help of an army of volunteers, and the generous contributions of Roland Pieper, an attorney whose granddaughter has Arthrogryposis, a Board of Directors was created, and work began on the daunting process of becoming a non-profit corporation. Submission of the application for the approval of the IRS occurred on October 6, 2006. On September 7, 2007, Arthrogryposis Multiplex Congenita Support, Inc. was granted Non-profit status as a 501(C)(3)corporation, and that dream became a reality.
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~Pictures from Chicago,(2006) 1st AMC Conference go to http://www.amcsupport.org/Convention2006.htm

~Pictures from Texas 2nd annual AMC Conference (2007) http://www.amcsupport.org/texas.htm

~Pictures from Ohio 3rd annual AMC Conference(2008)                              http://www.positiveexposure.org/amc

Also my pics on my pic page                 http://theresadotcom.zoomshare.com/1.shtml

2009, Philly 4th Annual AMC Conference

2010 5th Annual AMC Conference  Lake Buena Vista Florida

 http://www.theresalucas.com/Florida2010.htm

Luca "Lazylegz" 1k walk at the Grand Floridian during the 5th annual amc convention http://www.youtube.com/watch?v=uLRltnrCMQ4

6th Annual AMC Conference Kansas City, Missouri July 6th-10th 2011 go to http://www.amcsupport.org/KansasCity.htm

Painting with Theresa AMCSI Conference 2011 from Theresa Lucas on Vimeo.

Painting with Theresa Session at the 6th annual AMC Conference in Kansas City Missouri July 6th - 9th 2011

7th Annual AMC Conference will be held in

INDIANAPOLIS INDIANA! June 27th - 30th 2012!

Mission:
To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To create a higher standard of AMC awareness by means of Conferences, Meetings, and Studies.

Vision Statement:
To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include but not limited to occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.

                                                                 The Board of Directors (BOD):

                                                             bod@amcsupport.org

Ani S. Samargian, Founder
Theresa Lucas, President
Michele Schaffer, Vice-President, Program Director
Jennifer Keeton , Treasurer
Maggie Howell, Secretary
Doris Heckert, Parliamentaria
Zak Purdon , Member-at-large
Dale Wilson, Member-at-large
Suzanne Rudder, Member-at-large

Medical Advisory Board 

Dr.Harold van Bosse

Dr.Judith Hall

PURCHASE AMC AWARENESS

wristbands Car ribbon Magnets, note cards, posters etc

at our AMCSI Store

www.amcsupport.org/shop

tshirts & other supplies at

http://www.zazzle.com/_amcsi_w.zazzle.com_amcsi_