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Arthrogryposis Multiplex Congenita Support Inc. 

We are excited to announce that we have been approved for our 501(c) 3 non-profit status!!!!!
 

BECOME A MEMBER OF AMCSI!!

GO TO www.amcsupport.org/member
 

History:
Ani Samargian created AMCsupport.org, an online Arthrogryposis Multiplex Congenita (AMC) support group in July of 2005. Ani, the mother of
Abigail Marie , a child born with Amyoplasia, a form of Arthrogryposis, created the group because at the time, there was very little information available to families due to the rare occurrence of AMC. The online group was a direct result of the high volume of emails she received from families regarding a website she had created to document her daughterís progress. During the ensuing years, the interest and activity of the online support group grew and blossomed. From the original 30 members, membership has grown to over 400 families. Once a strictly online community, AMC support brought families together for The First Annual AMC Convention, a real world gathering, in Chicago, Illinois, during the summer of 2006. A second convention held in Arlington Texas, July 2007 brought even more families together. The largest portion of Aniís dream was to form an IRS recognized 501(C)(3) corporation that would continue her support of families and medical professionals well into the future. With the help of an army of volunteers, and the generous contributions of Roland Pieper, an attorney whose granddaughter has Arthrogryposis, a Board of Directors was created, and work began on the daunting process of becoming a non-profit corporation. Submission of the application for the approval of the IRS occurred on October 6, 2006. On September 7, 2007, Arthrogryposis Multiplex Congenita Support, Inc. was granted Non-profit status as a 501(C)(3)corporation, and that dream became a reality.
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~Pictures from Chicago,(2006) 1st AMC convention go to http://www.amcsupport.org/convention2006.htm

~Pictures from Texas 2nd annual AMC Convention (2007) http://www.amcsupport.org/texas.htm

~Pictures from Ohio 3rd annual AMC Convention(2008)                              http://www.positiveexposure.org/amc

Also my pics on my pic page                 http://theresadotcom.zoomshare.com/1.shtml

2009, Philly 4th Annual AMC Convention

2010 5th Annual AMC Convention  Lake Buena Vista Florida

Since '05, Arthrogryposis Multiplex Congenita Support, Inc. has hosted annual conventions at *NO COST* to attendees. This year our 5th Annual AMC Convention is being held in LBV, Florida.

6th Annual AMC Conference was held in Kansas City, Missouri July 27th - 31st 2011

7th Annual AMC Conference was held in Indianapolis Indiana June 2012

8th annual AMC Conference was held in Las Vegas Nevada July 2013

9th Annual AMC Conference was held in Minneapolis Minnesota July 2013

The 10th Annual AMC Conference will be held in Jacksonville Florida July 3rd-7th 2014!!!!

 


Mission:

To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To create a higher standard of AMC awareness by means of Conventions, Meetings, and Studies.

Vision Statement:

To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include but not limited to occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.



The Board of Directors (BOD):

bod@amcsupport.org

check out the Board of Directors at www.amcsupport.org/bod.html


PURCHASE AMC AWARENESS

wristbands Car ribbon Magnets, note cards, posters etc

at our AMCSI Store

www.amcsupport.org/shop

tshirts & other supplies at

http://www.zazzle.com/_amcsi_w.zazzle.com_amcsi_

  donate to AMCSI through Paypal click here--> AMCSI PAYPAL

or make checks payable to AMCSI & mail to

      Arthrogryposis Multiplex Congenita Support, Inc   P. O. Box 1883
Salyersville, KY 41465
 

 

     

 

 

This site was last updated 08/18/14